LA INTENDENTE DE PRESIDENTE PERON SE REUNE CON REFERENTES DE ENFERMEDADES POCO FRECUENTES
LA INTENDENTE DE PRESIDENTE PERON SE REUNE CON REFERENTES DE ENFERMEDADES POCO FRECUENTES
La intendenta Blanca Cantero recibió a referentes de instituciones Enfermedades Poco Frecuentes (EPOF), en la municipalidad, donde abordaron Temáticas puntuales, confección y conformación de una Mesa EPOF.
El propósito es promover los derechos de las personas con una EPOF que migran a distintos espacios sin encontrar una respuesta a sus necesidades.
La reunión sirvió, también, para presentar la campaña de Discapacidad Invisible “El collar de Girasoles”, destinada a promover la empatía e inclusión.
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Asistieron: la referente de instituciones de Enfermedades Poco Frecuentes del Municipio de Almirante Brown y referentes provinciales y nacional de Mucopolisacaridosis (MPS), Verónica Alonso; Cardiocongenitas Bonaerense con la Campaña Corazones Garrahan, Miranda Natalia, quienes acompañaron a la vecina María Mansilla, que representa el Síndrome Sturge Weber, mamá de Alma y miembro de la Alianza Argentina de Epilepsia.
Las referentes de estas entidades agradecieron en nombre de las familias, mamás, papás y personas con discapacidad, el recibimiento, la escucha activa y el compromiso del Gobierno Municipal
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